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No mistake

Tags: A   Audit   Audit Commission   BMA   England   GP   Information   Infrastructure   iS   Microsoft   Office   Out of Hours   Quality   US  
19 Sep 2006

EraserDaloni Carlisle 

It's all too easy to make a 'tpying errer'. When it’s E-Health Insider it just makes us look sloppy. But when it’s a GP practice it can determine whether a doctor has access to a new patient’s notes.

An exercise to test the quality of GP lists and how well practices cope with changes of address and deaths has uncovered just how easy it is for spelling mistakes to slip through the net.

The National Duplicate Registration Initiative (NDRI), found 4,781 misspelt Micheals (compared to 799,565 correct Michaels), making them difficult to track should they move.

The NDRI also found 135,000 patients on GP lists who were, in fact, dead. Over 10,500 of these had died before 1990 and so had been on a GP list for at least 15 years before they were removed. The longest case was a patient who died in 1964 but was not removed from the GP list until 2004.

These are some of the several fascinating results of this summer’s final report of the NDRI, a massive data matching exercise which started in 2003/04 and was undertaken by the Audit Commission as part of the statutory audit of primary care trust and local health board accounts.

In brief, it involved extracting electronic details of the 56 million patients registered with GPs in England and Wales, undertaking data matching with records from, for example, the Department for Work and Pensions and the Home Office then feeding back the matches for review.

“We also used fuzzy logic that would pick up things like the misspellings,” said project manager Darren Shillington. “That’s how we picked up the Micheals as well as more unusual one-off mistakes.”

In total almost 1.5 million matches were fed back to the 87 National Health Applications and Infrastructure Services (NHAIS) sites who manage the patient list data for all PCTs and LHBs. They in turn worked with their local GP surgeries to cleanse their lists of any duplicates.

Cancelled registrations

The Audit Commission’s main concern, as one would expect, was value for money. The audit took place as the new General Medical Services Contract came into play. With payments based in part on patient numbers, the Audit Commission was keen to make sure practices had accurate records.

By and large they did. The NDRI has led to 185,000 registrations being cancelled, saving £9.5 million. A significant number, to be sure, but representing only 0.3 per cent of the population.

Or as Mr Shillington puts it: “From our perspective we were looking for audit assurance. Is the data reliable and materially accurate? We got considerable assurance about the accuracy of payments being made on the basis of the data. Yes there are anomalies but we found that the system is solid.”

The NDRI highlighted the difference between NHAIS sites responding to the exercise. Each participant received a CD-ROM with matches that needed examining and while the Audit Commission provided guidance, each responded in its own way.

For example, Essex NHAIS sites automated a validation of 4,242 deceased persons’ matches by using Microsoft Access to compare all persons who had been removed as deceased since the NDRI data download date with the matches derived from the NDRI. Details of any persons not removed were fed back to the relevant practices, which were given two months to identify any patients who appeared to be alive.

While Essex was able to automate, others resorted to manual methods for this task. Some are still at it.

NPfIT and data quality

Mr Shillington said variation between NHAIS sites was to be expected. “Populations also vary,” he said. “Some sites have a very transient population and therefore a more complex task.”

The NDRI did not take place in isolation, however. It was timed to have the maximum benefit for the National Programme for IT and the Information Quality Assurance Programme (IQAP), both of which have an interest in data quality, not least because the basic demographic data for the proposed national care record will come from GP lists.

It identified several lessons for this wider effort. For example, the system allows duplicate registrations for the same NHS number – an issue that the report says must be addressed in the new patient demographic system. Temporary NHS numbers are still in use; these will not be allowed in the new system.

The Audit Commission has fed these lessons back to NHS Connecting for Health and IQAP. But for some that’s not enough.

Paul Cundy, chair of the BMA and RCGP’s joint IT committee says: ‘This is not a new issue. GPs have been ghost busting for years. But it highlights precisely why you should not have a single record for everybody.”

An out of hours service or A&E department will not be able to find any “Micheals” or separate the Lawrences from the Laurances, he says. “That’s why we would prefer a system where the emphasis is on information beamed from place to place and matched by the person.”

Link

The National Duplicate Registration Initiative

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1

Does the NDRI breach confidentiality?

Matthew.Grove@northumbria-healthcare.nhs.uk

20 Sep 06 11:13

There's some interesting stuff buried in the detail of this report. For instance, look at para 34 on page 15, about asylum seekers:

"The introduction of Home Office data enabled NDRI to identify patient registrations which related to persons who had been removed from the UK by the Home Office. In the majority of cases the registration has now been cancelled. However, the NHAIS sites identified some cases where the person appeared to have subsequently returned to the UK. Details of these were passed to the Home Office for them to consider what, if any, action should be taken. Based on this information the Home Office has made a number of deportations."

In other words, health records were used to identify undesirables who were deported. Whilst I'm sure the numbers involved here are small, ethically this has big implications for patient confidentiality - and if data started to be "shared" with the Home Office for people in other categories - for instance, criminals on the run - the numbers affected could be much larger.

Whilst from a societal perspective this use of health record data makes perfect sense, as a GP tasked with treating the patient in front of you this raises questions as to whether it's in that patient's best interests to be registered on your system.

And this is before the NCRS spine is properly up and running. I don't think this is going to encourage GPs who are concerned regarding data confidentiality to upload their practice lists...


2

'Deads' can be an incentive to GPs in unattractive inner city areas

24 Sep 06 17:46

It has been suggested that when capitation payments provide part of the funding for a practice, leaving the 'deads' in the register may provide additional funding for those working in those challenging areas. Perhaps there are better ways to do that. There are also legitimate reasons to leave 'deads' on file, when longterm longtitudinal studies are ongoing. It may be acceptable to cross-link data between public services if it is widely known and understood what and why and that the subject gives permission .........


3

Confidentiality

29 Sep 06 07:38

I was under the impression that every subject in this country has an NHS number and that that is the unique identification for them, so changing address, or misspelling thier name should have no impact at all. The name and address exists for operational convenience and verification purposes. Persons domiciled elsewhere can have their passport number used instead of their NHS number.

Remember, we are all numbers and not names. Rapid no invasive DNA testing will soon make this a lot easier.

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